We are coming up on Mr. Cheek’s second testosterone shot this week and I figured I would give an update on his progress and talk a little more about our journey with Klinefelter Syndrome.
First – I want to talk about his visit with his pediatrician…
We had to take Cheeks to his Dr. A couple of weeks ago and I was disappointed to find out that the specialist had not informed him of his new diagnosis. Do Dr.’s not talk to each other anymore? Really irked me…On the plus side – his pediatrician (whom I love) was actually very familiar with Klinefelters Syndrome! The first thing be said after B told him was, “We are going to have a tall one on our hands!”
He has never had a patient with it before, but he has worked with many patients with other chromosome syndromes and has many patients now with autism. It was nice to know we have someone in our corner on this new journey with us. He said that as of right now his development and motor functions are very advanced for his age (yes!) but he knows as well as we do that that could change in the months to come. We are all on the same page right now as far as watching for signs of autism and that’s all I can ask for. It gave me a sense of relief knowing A. The Dr. truly cares about Aiden (we have known that since his personal call on Christmas when he called to tell us, “I have been thinking.. And I thought about what I would do if this is my son… And id like for Aiden to see a specialist.”) and B. He knows about ks (from what I have read many drs don’t know much). So this is really great for us!
On to the testosterone shot:
– First and foremost there were no side effects that we saw with the first shot. If anything he was much happier and energetic! Which is never a bad thing.
– Within the first week we noticed a significant different in his willie! Before we couldn’t see it at all and now it’s poppin right out!
– I think the biggest change we have seen is in his muscle strength. He was able to lift himself much easier after his shot and has definitely been able to move quite easier.
– As far as his mental development he has been doing pretty good. He has found his screaming voice and has decided to scream and yell at anyone in his sight… Which was really funny at the mall this weekend. Brandon and I have been working really hard object training with him. Anytime he touches something we make sure to repeat the objects name.. Which seems to be working. I plan on starting sign language with him which I hope will help.
He has still been doing his stimulators wrist and ankle rolls.. Which I have been keeping an eye on.
That’s pretty much it on the update. We go into the specialist next week to have his second shot and I will update before his 3rd of this first series.
Also – if you missed my update on the first post about this.. These were the two sites that have me the most valuable info on Klinefelters Syndrom
http://www.openingautism.com/Genetics/ConditionDetails/26
Genetics.org
Written with my iPhone… Sometimes my fingers are drunk… Often my phone can’t translate
They come out of now where… When you least expect them to. It’s like they hide in your eyes until the moment is just right… when your content with your emotions and you finally… Just finally get your hormones somewhat in line. Then BAM! You have a moment of weakness. The weakness they feed on. Your child is innocently asleep in your arms, their head is resting on your chest, you can smell that baby smell, memories of labor slowly replay in your head, and you have then made the mistake to stare at the best thing that has ever happened to you for that second too long.. That my friends… That is when the cry monsters attack.
Mamma Bluette 